We had Aiden's Early Intervention appointment this afternoon and honestly, I should have trusted my motherly instinct and canceled the appointment. It was horrible.
We sat in a very clinical looking room for 3 hours while they interviewed us and gave Aiden all sorts of tests. By the end of the appointment, I was close to tears and Aiden was screaming and crying, "I want to go home!!!".
At first, it started out looking like it was going to be a pretty quick appointment. They looked over the paperwork that I filled out and asked us some questions, then said that they didn't see any real reason to be concerned about any delay. Good news. But then they decided that they wanted to do about five different standardized tests (plus a hearing test) on Aiden - just to "make sure". This is when it went downhill.
The woman giving Aiden the tests (she was a speech pathologist), started asking Aiden all of these questions about pictures and actions. When he wouldn't answer, she would raise her voice at him and say, "No! You need to answer me now!". When he would then completely refuse to answer any questions (by very forcefully saying, "NO!" - good for him for standing up for himself), she would mark the question she had just asked him as a failure to understand to the question. There was no way to differentiate on the scoring between failure to process and refusing to comply.
While this woman was yelling at my child, the other specialist was interviewing John and I. She was asking us all sorts of questions about Aiden's ability to follow instructions. We gave our honest opinion that he can follow instructions perfectly - when he wants to.
After this, they wanted to give him a hearing test. Aiden flipped out when they came into the room with this device with a bunch of wires protruding from it, wanting to stick it in his ear. Since he wouldn't comply with this, they wanted us to come back next week. When I told them that I didn't have my schedule for next week and didn't have the same days off each week so we didn't know what day would work quite yet, they just kept asking what day we wanted to come in. Because we couldn't get them to knock it off with the rescheduling and they were pushing this hearing test, we ended up holding Aiden down to administer it. I regret doing that now. Aiden was screaming in terror the whole time and I felt like an awful mother for putting him through that. After we got home, I noticed that the woman had totally scratched up the inside of his right ear.
After all that, they came back in with their test results. They insisted to us that through all the testing, he had shown "severe developmental delays" in communication and that he needed treatment through their program. When we asked how they came to this conclusion after initially believing that there was no delay, they told us that it was because of his inability to answer the speech pathologist questions and also due to our answering that he couldn't follow direction.
This is where I'm really frustrated. We did NOT say that he couldn't follow direction. We said that he followed direction just fine, except when he was acting like a normal three year old (not to mention acting like his dad!) and ignoring us. They either didn't listen to us or completely twisted our words to create a problem that's just not there.
Also, I refuse to believe that woman's test scores. Lack of cooperation from a three year old during a standardized test being given by a woman who is shouting at the child doesn't equal inability to understand and process the questions. We gave him those same questions at home from the at-home test that they sent us and he answered them just fine.
I got a little upset during the meeting at this point and flat out told the speech pathologist that one of the questions she had marked as "unable to do", I had asked him to do right after she left the room and he did it immediately. She insisted to me that while he may do it all the time at home, if she didn't see it, that means he is unable to process that question.
They tried to get us to sign a consent form for treatment right then, but we told them that we needed to think about it. We have talked about it and have decided to decline treatment at this time.
I feel like what we told them was totally ignored. I feel like they took his unwillingness to participate (while being yelled at) as a sign that there must be a problem. They created a problem where there isn't one. I just don't understand how they can go from complimenting his clear speaking style and telling me that there's no visible problem to insisting that he has a severe delay.
My son does not have a "severe delay" in communication. Those of you who have recently had a conversation with him probably knew that already! I don't know many other three year olds who can correctly pronounce "pachycephalosaurus". A child who has a severe communication delay cannot have a 15 minute conversation (complete with full, clear sentences with correct grammar and pronunciation) with me about different types of trains, railroad crossings, and shipping containers - among MANY subjects that we regularly talk about together.
Once we got home, I was totally upset and immediately burst into tears. Of course, having gone into work at 5am this morning after four hours of sleep probably didn't help the situation. But even with that, I'm just sort of shocked at how the whole thing went. I went in hoping for the best and I left feeling like I'd spent three hours traumatizing my child for no real reason. I'm sure other people have had great success with early intervention, but so far, we are not impressed.